Tuesday

The kidney doctor was in to see boyfriend yesterday at dialysis.
She has changed the dialysis from 3  times per week to 2 times per week. She said his labs are really good....................................................my hope is that soon he can stop dialysis all together.
He's doing better.  Yesterday he was up and down the basement steps twice, and he walked from the lobby to the elevator to the doctors office yesterday afternoon. The last couple of times there I had to take him in a wheelchair. So that's a big improvement!

I went to look at a house today. I was so hopeful that it would be the one. It wasn't..............................not even close!

Boyfriends sister and nephew are  coming for a visit this week.
I don't want to entertain.
 I don't want to prepare meals for visitors.
I just want our old life back!

sunday

It's 230 AM.
I can't sleep.
Boyfriend is up too.

Yesterday we celebrated oldest sons birthday.
I took him, his girlfriend, and his brother and sister
out for lunch. We went to a pizza place.
It was fun!

When I got home we had to run up to the ER
to have boyfriends IV replaced. His came out and we weren't
able to get a new one in. 4 more days and the IV can come out for good!

I'm not having the family over for Easter.
I'm tired and just want a quiet day at home.

Happy Easter.        :O)

thursday

Boyfriend was discharged from the hospital day before yesterday at 9 PM.
It was midnight before I had everything taken care of that needed to be taken care of........the next day started super early as I had to have him up, dressed, and to dialysis by 7, and I had an appointment with the cardiologist at 745.........I felt stressed, and overwhelmed but from there the day only got more hectic and stressful......................I had multiple doctors to schedule appointments with, the pharmacy sent someone elses medications to us, they didn't send an IV pole and then forgot to send it at the next delivery, and the wound vac didn't get delivered. The visiting nurse was here from 4 - 730...........at one point I almost asked her to just get out..........my head was pounding, and boyfriend was exhausted.....................we had dinner at 8 pm and then boyfriend crashed...............it was my birthday and it kind of sucked.
Today should be better. We have no appointments and no one is supposed to come to the house. We got up at 330......................................................I organized, again, all of the equipment, bandages, medications, and paper work.............folded a load of laundry and threw a load in the washer........and threw out a bunch of crap.....
boyfriend is napping.
I probably will in a little bit.

sunday

I didn't sleep last night. It just wouldn't come to me. Finally at 6 AM I crashed and slept until 10 AM. When I got up I went to the hospital to see boyfriend. I gave him a haircut, trimmed his eyebrows, bathed him, shaved him, and lotioned his skin.
He's doing better. I'm optimistic they will discharge him this week.
They've been doing dialysis.
I still think his kidneys will rebound. Two of the doctors have told him they won't but I think they are wrong, young, green, impatient........................
Watched the Masters Tournament today with boyfriend.
I was rooting for Tiger!

hjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjj (<<

17 months since I quit smoking. :O)
It feels so good.....so liberating!

It's 3 am.
I couldn't sleep so I got out of bed
and folded a load of laundry, vacuumed, cleaned the litter boxes, paid bills,
and organized my purse.

I wasn't able to get to my car to clean it until yesterday..........feels good to have a clean car. I also went to the city bldg and paid property taxes on my car, and renewed my plates....glad to have that out of the way!   And then yesterday we filled out the form for boyfriend  for an extension for his taxes........nice to have that little task off of our backs!

I've been listening to sounds of rain on You Tube for when I fall asleep at night...................it's soothing and relaxing.

monday

My younger (a year younger) sister came to town yesterday to take me out to lunch for my birthday which is in a little over a week. She took me to the hamburger stand that is pretty popular around here this time of year. They only have outside seating. So it's what we did......sat outside at one of the picnic tables.............is was a nice sunny day, a good day to be outside.
It was a good day.

saturday

daughter came home from the hospital with me last evening and we had supper together.........she also went to the store with me..............we had fun listening and singing to one of our favorite country girl bands from way back when..........we had ourselves cracking up laughing.......it was fun!

saturday

I got up this morning at 3am......couldn't sleep..............organized and cleaned up the medical equipment and papers on the buffet, dining room table, and dining room floor. It looks a lot more tidy......I also vacuumed, dusted the living room, changed the dining room table, table cloth, folded a load of laundry, and threw a new load in the washer. Oh, and I cleaned out the litter boxes and went through the mail................
I did get up early yesterday and did my taxes, finally. I probably screwed them up because I rushed through them.....but still I'm glad to have them filed on time.......
My goal today is to vacuum both cars and run them through the car wash before I head up to the hospital.
It's 5:15 am.
I'm going to take a little nap then get going again.

thursday

boyfriend's back in the hospital since tuesday.

he is in acute renal failure.

he has received dialysis twice since then.

they are hoping the kidneys will begin to work again......

he was very sick the first couple of days......had issues with his breathing, nausea and vomiting, and tonic clonic movements all over his body.

he was miserable.

he was certain he was dying.

i spent the night with him.

today he is doing much better i think though he is 

very emotional.

he had a niece visit from colorado today.

he was very happy to see her, and cried when it was time to tell

her good-bye.

i got home tonight after 10......had salad for dinner.......listened to phone messages............brought the box in off the porch that ups was supposed to pick up today but didn't and kissed the kitties.

my house needs to be cleaned.

i did clean the bathroom and kitchen this morning before going to the hospital, and i am caught up on laundry, but the rest of the house needs to be cleaned.................and i still have to file my taxes....i just can't seem to find the time or energy to file them.......

sunday

the days fly by and before i know it its been 10 days since i last posted to my blog! crazy.....
boyfriend is hanging in there. i give him his daily iv antibiotic, check his blood sugars, weight, vitals, and give him insulin,  pills, and breathing treatments, and foley catheter care............and then   i reinforce his wound vac dressing when it is leaking..................a nurse visits 3 times a week and PT visits 3 times a week. my living room looks more like a hosp. room than a living room............and i'm kind of getting used to strangers in my house............................all of them like my cat Woody......they giggle/ewe and awe when they first see his little face. lol
getting to our doctor visits is the most difficult part.....carrying a portable oxygen tank, and a wound vac while wearing a surgical boot and using a walker to get from the house to the car sometimes feels like a major task.............once we get to our location we transfer from the car to a w/c which is much easier because the walker is left behind and all the equipment can sit in the w/c with boyfriend.
boyfriend thinks all of this is permanent.
he gets very depressed and anxious.
i try to be his rock.
i reassure, and encourage.
i'm not always sure myself how all of this
will play out.
it's stressful some of the time.
some of the time we fight/argue mostly because he is bull headed, lol.....but we don't do that very often!
i always try to be patient and kind, and he is almost always grateful.
i tell him that we will get through this.......

thursday

boyfriends brother stayed at the hospital with boyfriend all day the other day. i left them after a few
hours and went to a antique store with boyfriends SIL. We had a blast together. We also went out for lunch. It was great spending time with a girlfriend talking about stuff girls talk about with each other and it was good to get away from the hospital.
yesterday i stayed home and got a few things done around the house. boyfriend was being discharged so his brother and SIL volunteered to do what needed to be done at the hospital and to bring him home. i can't even begin to say how grateful i am for their help!....and their friendship!!

monday

Up at 4 AM, couldn't sleep.
Did a load of laundry, dusted the living room and bedroom......unloaded the dishwasher.....washed the cat bowls, and cleaned the litter boxes.
Will go to the hospital in a few hours.
Boyfriend is doing better.
The staph infection infected his aortic valve. They say six weeks of IV antibiotics will take care of the infection.
Boyfriends son went back home yesterday. He was here for a week.
Boyfriends brother and sil's flight to here was canceled this past Thursday because of the blizzard in Colorado......we didn't think they were coming. They ended up driving, showed up yesterday....will be here for almost a week.
I've been having heart palpitations. I went to the doctor who did a EKG..............she's having me see a cardiologist and she ordered Prozac...................actually she ordered the Prozac many many months ago. I just didn't take it. I'm taking it now......but still not sure if I'm going to continue to take it.

thursday

boyfriend is still in the hospital.
he was septic. ....very sick....
they did surgery yesterday to clean his wound/debride a bone in his foot.
pneumonia improving.......family here from colorado...........more family was supposed to come today but their flight was canceled because of the weather there......

saturday

Boyfriend is back in the hospital.

His wound/bone in his foot/leg is probably infected and he has pneumonia.

He's quite sick.

Breaks my heart seeing him go

through all of this sickness.

saturday

I brought boyfriend home from the care/rehab facility 3 days ago.
He will continue to have skilled nursing care, physical therapy and occupational therapy
at home.
The wound on his foot is healing well.
He developed pneumonia while in the care facility.
He's still dealing with it. The doctor restarted him on an antibiotic and steroid a couple of days ago.
Hopefully he improves and doesn't end up having to go back to the hospital!