Thursday, June 13, 2019

thursday



I was stressing out about having to work tomorrow.
Boyfriend has dialysis and is not able yet to drive . Plus he has so much equipment to carry
he can't do it alone....................and then coming home and getting back into the house while alone would be impossible for him. To boot, he is on a new eye drop regime that goes on for 8 weeks.......a drop every 2 hours for 6 doses a day. The med is 6000 per week..........luckily his insurance pays all but the co-pay  is  1040. per week. The National Organization for Rare Diseases is paying the co-pay. He is not able to administer them. Doses can not be missed. It's his last chance/treatment for the eye that might allow the eye to be re-opened........and although I tried to figure out a way to get his needs met while I'd be at work, I wasn't able to. Finally I decided to just call my work and let them know what was going on and that I could not work my day in June, and if they decided to fire me then so be it.
HR was very nice, and supportive. They told me not to worry about missing that day and I will work a day in late July.
I am so grateful. I so much did not want to lose my job!

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